What is the life expectancy of someone with hypoplastic left heart syndrome?

What is the life expectancy of someone with hypoplastic left heart syndrome?

Most infants die within the first two weeks of life, with an average age at death of 4.5 days (31,33,34). Some patients with HLHS, however, can survive beyond sixty days, without any surgical intervention through the development of pulmonary hypertension (8,33).

What was the oldest person with hypoplastic left heart syndrome?

The oldest living person with HLHS is their 30s. Ultimately, the Cribbs hope and pray that Leigh Ann has a long life ahead of her. Texas Children’s Hospital – part of the Children’s Miracle Network Hospitals is excited to celebrate the third annual Children’s Hospital Week from March 18-24.

Can a baby survive hypoplastic left heart syndrome?

Without surgery, hypoplastic left heart syndrome is deadly, usually within the first few days or weeks of life. With treatment, many babies survive, although most will have complications later in life.

Can you live a normal life with HLHS?

Most babies who receive treatment for HLHS live a healthy life. Children with this condition need lifelong follow-up with a cardiologist.

What are my chances of having another baby with hypoplastic left heart syndrome?

Most often, the chance of having another child with a CHD is 2-3 percent. Not every individual with one of these types of heart defects has a genetic condition.

Is HLHS curable?

Hypoplastic left heart syndrome is treated through several surgical procedures or a heart transplant. Your child’s doctor will discuss treatment options with you. If the diagnosis has been made before the baby is born, doctors usually recommend delivery at a hospital with a cardiac surgery center.

What are the chances of having another baby with HLHS?

Individuals who have a personal or family history of CHD have a higher chance of a heart defect happening again in the family. For most people, the risk of having another child with a congenital heart defect ranges from 3-5 percent. However, for those who have particularly rare conditions, the risk can go up to 50%.

How long do Fontan patients live?

Conclusions: Over 80% of patients who survive Fontan surgery will be alive at 20 years. Developing late sequelae including protein losing enteropathy, ventricular dysfunction or requiring a pacemaker predict a higher risk of late death.

Is hypoplastic left heart syndrome a disability?

If your child has been born with Hypoplastic Left Heart Syndrome it may help to know that he or she will automatically qualify for Social Security Disability benefits because the SSA has recently determined the condition meets the criteria for Compassionate Allowance status.

Can a heart transplant cure HLHS?

Does a heart transplant cure HLHS?

Is there a cure for hypoplastic left heart syndrome?

Without treatment, babies afflicted with hypoplastic left heart syndrome can die within the first days or weeks of life. Treatment consists of a heart transplant or a series of operations to restore the function of the left side of the heart.